Terry Cohen, a young adult with Myotonic Dystrophy never wrote a book, and then after graduating from high school, he decided to write one dedicated to all young people with progressive disabilities and seeking a full life. Terry writes- he has a disability and disease inherited from his mom, and must face it every day of his life. As a teen, he struggled the most, and then it hit him- "My disability isn't in charge of my life. I am." It was up to Terry to make his life worthwhile, despite all his problems. Here are just a few of the skills he writes about: -Getting doctors to stop talking over your head and scaring you -Finding healthcare buddies who really care about you, not just treating your disability -Making good friends -What to do when people don't give you a chance or expect next to nothing from you -Having fun; enjoying your life despite your limitations -Achieving the goals you set for yourself -Living the life you want
